Power cuts, severe weather, building evacuations and urgent medical visits are hard for any family. For an autistic or ADHD child, sudden noise, waiting, disrupted routines or separation from familiar communication tools can add another layer of risk. A small go-bag and a practised plan can make an emergency more predictable.
Pack for communication and regulation
Include the child’s usual AAC system or a low-tech backup, plus simple cards for “yes,” “no,” “stop,” “toilet,” “pain” and “I need a break.” Add noise-reducing headphones, a familiar fidget or comfort item, sunglasses, safe snacks and water if appropriate. Pack a charger or power bank for essential communication devices and consider a printed backup if electricity may fail.
Label the bag clearly and keep it where caregivers can reach it. Check food, batteries and clothing sizes regularly. Medicines and medical supplies should follow the storage and emergency instructions given by the child’s qualified healthcare professional.
Create a one-page information sheet
Record emergency contacts, diagnoses or health needs that responders must know, allergies, current medicines, communication style, distress signals, calming supports and any wandering risk. The American Academy of Pediatrics and American College of Emergency Physicians recommend an Emergency Information Form for children with special healthcare needs so critical information can be accessed quickly. Ask your child’s clinician to help complete and update it.
Keep copies in the go-bag and with trusted caregivers. Protect personal information and share it only with people who need it for the child’s safety.
Practise the smallest version
Show the child the bag during a calm moment. Practise one step at a time: put on shoes, pick up the bag, walk to the agreed meeting place, then return. Use visuals, pretend play or a simple social explanation. CDC guidance recommends involving the child where possible and practising the plan to support safety and calm.
Coordinate with school or childcare so everyone knows the child’s communication method, collection plan and safe meeting point. If wandering is a concern, combine this preparation with AutDHD’s autism elopement safety plan. Families may also find the AAC at home guide useful for creating a portable communication backup.
Sources: CDC: Children and Youth with Special Healthcare Needs in Emergencies, CDC: Safety Plan Considerations, and American Academy of Pediatrics: Emergency Preparedness.
This is general information shared for parent awareness, not medical advice. Every child is different — please confirm decisions with your child’s doctor or a suitably qualified professional.